Part 6

Hemophilia: Promoting health in children

Hemophilia: Promoting health in children

María José Baqueiro Victorín & Nancy Marine Evia Alamilla
Universidad Autónoma de Yucatán, Mexico

Abstract
One of the main goals in childhood is to be independent. It is an ability normally developed by children when they have good conditions. But, when children have a chronic illness such as hemophilia, they have affliction and experience stress especially when they have to be in hospitals and have diagnosis and therapeutic processes that can be aggressive and painful. The reason for this affliction is because they have not developed good coping strategies and, as they grow up, they get more conscious of their illness, and it makes them feel uncertainty. So, children need psychological and social support and it is also important to be well informed about the illness. This paper describes the Participatory Action Research (PAR) done under the Health Psychology perspective with four to twelve years old children with hemophilia or who have any relative with that illness. The PAR first phase detected the principal needs, including the need for knowledge about the hemophilia, and the need to promote healthy behaviors.

Author(s)

María José Baqueiro Victorín & Nancy Marine Evia Alamilla

María José Baqueiro Victorín & Nancy Marine Evia Alamilla
Universidad Autónoma de Yucatán, Mexico

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